No Such Thing As Normal

An adoptee shares –

My adoptive mom would always have me getting diagnosed with nearly everything in the DSM growing up all the time. I’ve since come to the conclusion there is no such thing as normal. The point is, my voice was never heard as a child and I was on a million different meds and diagnosed with a million different things. I wasn’t ever diagnosed with autism specifically, but my adoptive mom suggested it many times to my doctors, as she did everything else because something clearly must be “wrong” with me (yeah normal adoption trauma, but we can’t talk about Bruno).

All I’m saying is be careful how you paint that picture. I was always pissed that my adoptive mom kept saying there was something wrong with me. All I ever wanted was to be normal. As I’ve grown older, I definitely notice I’m more intelligent than a lot of people and I’m quirky, sure. But to be diagnosed with ADD, bipolar, depression, BPD, and everything else? If I can get diagnosed with 15 things and no doctors can agree what is “wrong” with me, then isn’t it all just BS anyway?

(blogger’s comment) I loved my mom dearly (she in now deceased). My dad said she was a hypochondriac. She also did tend to think things were wrong with us too. Each of us as her daughters had experiences directly caused by that. All I can say is I’m glad we survived them. There may be some truth that much of it had to do with her being adopted (that pesky primal wound), though I can’t know that for certain.

Learn to live with how you are. Give your child the tools to do that. That’s it. That’s life. I think very few people truly require medication. Everything else is just learning who you are and having the coping skills to handle it.

The responses shared above (except my own blogger’s comments) were offered due to a post about a “child diagnosed as autistic at the age of 2, who has made huge strides (cognitively, developmentally, emotionally, socially, etc), however does not know/understand her autism diagnosis.”

(another blogger’s comment) Though it may be that all of the males in my family are somewhat Asperger’s, we never wanted them to be permanently labeled with a diagnosis. The closest we came was having the boys professionally evaluated after being homeschooled for many years, to make certain we had not failed to give them a good foundation (we had not failed). The psychologist said, I wish more parents with children like yours had your attitude about it. We have encouraged their interests, given them support regarding those but allowed them to create their own paths. Now at 18 and almost 22, they are awesome human beings with definite strengths and a strong sense of their individual character. We have no regrets about the choices we made during their childhoods.

Not All Misses The Point

Within a large adoption community discussion space, one often sees the push back from some that their adoption experience was not so bad. When I first went into that community, I was definitely in “the fog” of believing adoption was a good thing, or at least natural. Both of my parents were adoptees and both of my sisters gave up babies to adoption – no wonder – but I have learned so much in the 4-1/2 years since I began to learn about my original grandparents that my perspectives, I believe, are not only more realistic but better informed. I owe a lot of credit to that adoption community that I continue to be a part of.

This morning I did several google searches looking for content to add to the text graphic above. Hard to find anything under “not all,” oppression vs protection, etc. But finally I did find one that seems to bridge both points of view – I Am Grateful To Be Adopted—and Yet, Adoption Is Still Traumatic by Theodora Blanchfield at Very Well Mind, <LINK>. I was also surprised to see a blog from Missing Mom from last year show up in a search.

I think this article also reflects something my adoptee mom said to me at the end of her life – she never could really totally sort out her mixed feelings about having been “inappropriately” adopted (as she termed it) as well as being denied her own adoption file by the state of Tennessee or any possibility of a reunion with her original natural mother (who it turns out was married but separated from my mom’s father and therefore, exploited by Georgia Tann). She said something like, “you know, because I was adopted” (related to trying to create a family tree at Ancestry and how it “just didn’t feel real to her”) and quickly adding “glad I was.” Yet, it didn’t feel genuine.

Like Theodora, my mom grew up in privilege (my mom’s adoptive father was a banker and her mother a socialite). Yet, Theodora writes –

“I have dealt with severe depression, and my psychiatrist monitors me for signs of bipolar because of genetic susceptibility combined with that attachment trauma. I’ve been in inpatient treatment for six weeks, I’ve attempted suicide twice (adoptees are four times as likely to attempt suicide as non-adoptees and deal with mental health issues at a higher rate than non-adoptees). I receive monthly ketamine infusions for my treatment-resistant depression.”

I am aware my mom, admitted to me, she had at least once contemplated suicide. I know that she was frequently under the care of a psychiatrist and was sometimes prescribed Lithium (a mood stabilizer that is approved for the treatment of bipolar disorder, also known as manic depression. Bipolar disorder involves episodes of depression and/or mania).

Theodora notes – Adoption narratives, like many other things on social media, paint things much more black and white than they actually are for many people. Anti-adoption advocates paint adoption as akin to human trafficking; adoptive parents and adoptee advocates paint adoption like it’s a fairy tale with a happy-ever-after ending. But what if it’s somewhere in between? 

She goes on to describe many other unpleasant effects that she believes ARE related to the trauma of having been adopted. She adds “Privilege doesn’t negate not knowing where you came from or erase that always-wondering what’s nurture and what’s nature—something you’ve probably never thought about if you’re not adopted.”

She adds, “Telling an adoptee that you ‘don’t think of them as adopted’ is a knife that cuts both ways. It’s meant to be an olive branch, but it also discounts that it is my reality, that I was separated at birth from the woman with whom I share DNA who carried me for nine months. It invalidates the reality of the complexity of all those feelings bubbling up just below the surface, pushing them down until that soda bottle bursts, spilling out years of repressed emotions.”

Developmental Trauma Disorder In An Adoptee

“All diagnoses are wrong, but some are useful.” George Box

The kinds of complex issues that adoptees face can be difficult to treat. A 2013 study found that fewer than 25% of adoptive parents who sought mental health services felt that their mental health professional was adoption-competent. The symptoms and issues that adopted children experience are typically not taught in most graduate school mental health programs. Adding to the challenges faced by adoptive families, insurance companies will not cover what is really going on with these children and their families because it is not correctly conceptualized, coded, and diagnosed.

Some common diagnoses used with adopted children include Pervasive Developmental Disorders, Oppositional Defiant Disorder, Conduct Disorder, Reactive Attachment Disorder, Affective Disorders, Anxiety Disorders, Attention-Deficit Hyperactivity Disorder, Post-Traumatic Stress Disorder, and Borderline Personality Disorder. Each of these may characterize certain symptoms that these children demonstrate, but none of them systemically addresses the developmental aspect of trauma that most (if not all) adopted children experience. None take into account the sad possibility of being traumatized by birth or foster-parents. “There is no diagnosis for children that more than partially addresses the symptoms associated with these impairments in self-regulation” according to Julian Ford, PhD, who is a psychologist with the University of Connecticut.

“Developmental Trauma Disorder” or DTD includes symptoms that differentiate it from Post-Traumatic Stress Disorder PTSD more commonly associated with the “Battle-Fatigue” symptoms of WWI. Children are often traumatized in the context of relationships. Because children’s brains are still developing, this trauma has a much more pervasive and long-range influence on their self-concept, on their sense of the world, and on their ability to regulate themselves.

There are four diagnostic areas involved in DTD – [1] Exposure [2] Triggered pattern of repeated dysregulation in response to trauma cues [3] Persistently Altered Attributions and Expectancies and [4] Functional Impairment. Those who’s work has been focused on adopted children who have suffered various forms of Complex Trauma will recognize the manifestation of these. The American Psychiatric Association failed to include this in the Diagnostic and Statistical Manual of Mental Disorders – Fifth Edition (also known as the DSM-V).

The problem with this oversight is that after experiencing chronic trauma, the current standard of clinical practice often reveals no diagnosis, inaccurate diagnosis or inadequate diagnosis…all of which leads to misguided or complete lack of treatment plans. Further, because there is almost always considerable dysregulation of body (sensory and motor), affect (explosive/irritable or frozen/restricted), cognition (altered perceptions of beliefs, auditory and sensory-perceptual flashbacks and dissociation) and behavior (multiple forms of regression), the diagnoses of bipolar, oppositional defiant disorder/conduct disorder, attention deficit hyperactivity disorder (ADHD) or other anxiety disorders are made. Many of these disorders are co-morbid with developmental trauma disorder, as they tend to cluster in these complex families. But the importance is that the developmental trauma disorder would be primary and thus guide the treatment plan…and further, refine the inclusion (or not) of other co-morbid disorders.

Today’s blog was informed by an article Could My Adopted Teen Have Developmental Trauma Disorder? by Dr Norm Thibault, LMFT

Clueless

“Hey guys.I’m a single woman who’s plan was to start applying to adopt/foster in my state. Sad story was that my social worker said that I wasn’t allowed to receive any government help like 0. I have to have a job which that’s mandatory at least with this agency. And I’m not complaining about having a job either or I’m still planing on working at some point the thing that caught me off guard was her response to government aid must be 0. Yes all the way from food stamps to government funded apartments that’s a huge No, causing disqualification to apply. I spoke with my therapist and since I have bipolar 1 she told me that it would be best to postpone the plan of adoption/foster care all together for now, my therapist even said that she does not want me to feel sad if at the end foster/adoption care is not an option for me even if I truly wanted to make a difference, since the agency is strict on keeping government out of the picture.
Any thoughts?
Advice?
Does this sound fair or unfair ?”

It’s hard to know where to start . . .

Not surprisingly, came this satirical response –

Um. Totally unfair. You should totally be jobless and on government assistance because you’ll get PLENTY of money to live on saving these kids from their parents on government assistance. If you take like 8 kids at a time you’ll make serious bank, and BONUS if you take some older kids with the younger kids you never have to do anything because the older kids can do all the cooking and cleaning and diaper changes! Yay! Also, f**k this bitch.

More to the point, came this one –

Someone sounds like they need to get their own life in order before, erm, “helping” (themselves to someone else’s children)…

And even more to the point –

Yes, it is very reasonable. FYI, they may also want to talk about your being bipolar, review your meds and/or want to talk to your therapist or get a statement from them that they recommended you would do well with foster care. Here’s the thing: all of the kids in foster care are going through big time trauma. They need someone who is financially and emotionally stable to help them through it.

In a lot of cases, poverty and mental illness have a lot to do with why the kids came into care. It’s kinda hypocritical to take them out of that just to place them right back into it. For example, the case plan might say that the parents have to get a job to get the kids back. So in the meantime, they stay with you, but you don’t have a job?

It’s great that you want to help, but what do you mean by foster/adopt? If you’re getting into foster care to adopt, just don’t, you won’t have the right mindset and it will not be good for you or the kids. What do you mean by your agency keeping government out of the picture? Foster Care =government, so I’m not really understanding that.

And finally –

She should talk to all these birth families who lose their biological children for bipolar disorder and because they were seeking mental health help and were in poverty or disabled. This post makes me angry because it seems so out of touch with reality.

Foster kids are not a prop or little adventure to embark on. You can’t just (or SHOULDN’T just) be a foster parent because you randomly decide you “love kids” and “it’s your calling.”

You can’t just decide you’re gonna be a foster parent when nothing in your life is in order to do so.

Mental health, unemployment, needing to rely on the system….. these are some of the causes for kids to be removed from their biological parents.  Our society would be better off extending the services and finances to the natural families so that they can keep their own children.