Every Person Deserves To Know Their Origins

From LINK>The Huffington Post by Marie Holmes – There are some key differences between the experiences of adopted and donor-conceived kids, but one thing remains the same: They should know about their origins.

For many people today, a surprise DNA test result opens the door to their true identity. The outcome can reroute their lives around uncovering of their family’s secrets. Many become advocates for people having full access to their genetic histories. I certainly believe that is important. From experience, I know that my genetic origins did matter greatly to me.

One woman describes finding out that her parents’ story, the story she’d bent herself into a pretzel to continue to believe, was a fabrication. The years that followed were difficult. “I went through a really serious time of grief and just identity crisis.” For a time, she didn’t speak to her parents.

The current consensus among professionals in the related fields is that it is best for children to know their whole story from the very beginning. That has been the perspective for me and my husband with our donor egg conceived sons. A communicative openness is best between parents and their children. Always we have believed in as much openness as our children encourage. We did not made a big deal of it, just a matter of fact-ness on occasion when called for.

And yet, secrecy is still an issue. Advocates today recommend a ban on anonymity. In my mom’s group, almost 20 years ago, we split into “tell and don’t tell” members. No one anticipated the inexpensive availability of DNA matching sites like Ancestry and 23 and Me. Parents who have not yet disclosed to a child that they were donor-conceived, are encouraged by advocates not to wait another moment. Ideally, children would never remember a time before they knew they were donor-conceived, because parents would speak about it frequently and openly. There is no minimum age a child needs to reach in order to hear the story of their origins. It is the right thing to do for their children and parents owe this truth-telling to themselves. Secrets do have a tendency to out themselves.

Unfortunately, sperm banks, egg donation agencies and other providers of third-party reproduction continue to remain silent on the issue of a donor-conceived person’s right to information about their origins. To be honest, in the past parents were usually not given any information about their donor, and donors weren’t told how many children were born as a result of their donations. Today, queer couples and mothers who are single by choice make up a majority of any sperm banks’ customers. These families tend to have a different attitude toward their sperm donors’ anonymity, with many specifically search in advance for “willing-to-be-known” or “identity release” donors who agree to allow their children to contact them once they turn 18.

To be certain, there are crucial differences in the experiences of adoptees and donor-conceived people. The latter generally grow up knowing one biological parent. Adoptees must also reckon with deeply emotional questions regarding why their family gave them up for adoption. Donor-conceived people do not have that challenge. A recent study published in the journal Developmental Psychology surveyed 65 families formed via third-party reproduction (sperm, egg or embryo donation) and compared them with 52 families who had not used assisted reproduction. The children were 20 years old at the time they completed the survey. Researchers found “no differences between assisted reproduction and unassisted conception families in mothers’ or young adults’ psychological well-being, or the quality of family relationships.” I find this good news but also my own experience.

It’s worth noting that in families where the children were informed about the donor by age 7, they were less likely to have negative relationships with their mothers, and the mothers themselves showed lower levels of anxiety and depression. The study’s authors say their findings “suggest that the absence of a biological connection between children and their parents in assisted reproduction families does not interfere with the development of positive mother–child relationships or (the children’s) psychological adjustment in adulthood.” With donor conception, an intentionality on the parents’ part appears to make them feel more responsible about telling their children the full story of their creation. So, are not adoptive parents also intentional about their choice ? I wonder. As my sons matured, we did 23 and Me, first for their father and then, for each of our boys. This allowed us the perfect opportunity to fully explain the reasons behind our choice. Their donor also did 23 and Me and they have the ability to privately contact her there should they wish to. They have had some contact with their donor, though years have passed since. They are aware she has other children and I show them photos from Facebook so they have some idea.

Secrecy v. Privacy

I belong to a group that almost 20 years ago divided into a “tell/don’t tell” perspective. I often wonder how that has worked out for the don’t tell group. And if it has served, at what point might their offspring do a inexpensive DNA test and thereby learn the truth – that they were lied to their entire childhood. I’m glad we never thought to go in that direction.

My blog today is inspired by an article in Psychology Today LINK> Secrecy v. Privacy in Donor Conception Families, subtitled Walking the fine line between privacy and secrecy is inherent in donor families. Some of the differences – Privacy is the choice to not be seen, while secrecy is based in fear, shame, or embarrassment. Privacy involves setting comfortable and healthy boundaries. Carrying a family secret is a heavy burden. Donor families based in honesty and transparency have more meaningful and deep relationships.

In that group I mentioned, we each recognized a right to privacy for each other and honoring their right to privacy demonstrated our respect for their choice and was a foundation for trust among us. Withholding information for fear of the consequences implies a negative kind of secrecy. Secrets require a lot of emotional energy and are a heavy burden to carry. Secrecy undermines trust and is therefore harmful within relationships. Privacy, which includes creating healthy boundaries is generally beneficial. Learning when and how to create boundaries is a good lesson to teach one’s children, especially in this age where information seems to flow so readily and once out there, can’t be taken back.

The stigma of infertility is still very present in society and is often the reason why a couple may not want to be open about how they were able to conceive their children. Yet there is also a sense of social responsibility that has mattered to me from the beginning. Women are generally NOT fertile beyond a certain expiration date. When someone conceives at such an advanced age as I did (46 and 49), that could give the wrong impression to another younger woman that they have more time in which to begin their family desire fulfillment than they probably do. There are always exceptions to anything age related but that is a general rule. Much harder to conceive after the age of 40. I conceived very easily in my 20s.

Many children not told the truth about their origin – whether it was adoption, a donor facilitated conception or an illicit affair – still feel that there was something being withheld from them. When they discover the truth, they often feel anger. Even with the more modern openness, such origin stories are still not the norm. Many who are aware of their status may have little opportunity to talk about it to others who understand. Some may not have the language to speak about their experience.

I have given my children the gift of 23 and Me testing and accounts. Both their egg donor and their genetic father are there. This has led to questions from relatives of the donor to one of my sons. My advice to him as tell them to ask their donor about whatever they are curious about. When one donates genetic material, they must be aware that questions may arise in the future. It is only natural. Still, it was my perspective it is up to her as to what or how much she wishes to tell one of HER own relations about the circumstances. Having the 23 and Me channel gives my sons a method of privately communicating with their donor. I also frequently show them photos of her and her other children, so they are more aware of these persons with which they are genetically related. Distance prevents closer, in person relationships at this time, though they have met her in person more than once. I have an interestingly close, psychic and emotionally connected, relationship with my sons. My belief is that it comes from a combination of carrying them in my womb and breastfeeding them for over a year plus being in their lives pretty much 24/7 for most of their childhood (though there have been brief absences for valid reasons).

The Brave New World

It is a reproductive fact – the egg contributes 50% of a person’s DNA, the sperm contributes 50% of a person’s DNA. For donor conceived children, the mother and/or father who is raising them may or may not be genetically related to them. Often, at least one parent is but in the brave new world of creating human beings utilizing reproductive technology – a child may be raised by a single mother who is not related at all to her child – though she may have carried the child and even breastfed her baby. The truth is that one’s marriage to their child is life-long, though as in the case of divorce, a genetically related parent may not be in their child’s life 24/7 or even throughout the childhood.

I do know of families with donor conceived children for whom the donor was anonymous – this can apply to egg donors as well as sperm donors. Fact is – Anonymity — as a pragmatic matter — can no longer be guaranteed to the donors who contribute to the existence of any donor conceived person. Donor-conceived people have interests all their own. Not all donor-conceived people know about their origin, and many express an interest in knowing more about their donors, including medical and identifying information. In a group of adult donor-conceived offspring from the 256 families that were eligible to receive identifying information, 85 (35%) contacted the clinic for this purpose. Many of those who contacted the clinic did so within the first three years after they turned 18, with the most common motivation to obtain information about their donors, including who they are as a person, their reasons for donation and their medical and health information. Third, recipients have a strong interest in knowing about the health risks their future children may experience based on the medical history of the donor.

Today, a woman writes – I’ve decided to conceive through a known local donor and my own egg. The child will know this man is their biological father. We are planning on meet up at least every 2 weeks from birth and he will receive plenty of pictures. He has also agreed to donate a second time in about 2 years so that my children will be biological siblings. (my note – that is certainly what my husband and I have as sons.) My question is, is there anything I’m overlooking in my excitement that I can do differently for the well-being of the child with this set up?

There are some details that sound like they haven’t been worked out yet. Is this an informal sperm donation or is it being arranged through a bank? Will he be listed on the birth certificate as the child’s father? Have you asked for perspectives from donor conceived people? Do you have a support system to help you raise the baby if he is not planning to be involved financially or practically? Has anything been drawn up legally? If he is not on the birth certificate as the father then he has no responsibility to help, participate or abide by your wishes. Sperm donors are not treated as the father of the child by law. No matter how much you may like and trust him today, things can change. To be clear, I am not against you creating a donor conceived a child. I encourage you to work out the legal details and to really think about the what if‘s no matter how unlikely they may seem now.

One response and some additional questions was this – The most ethical way to do this would be to list him on the birth certificate as the father and actually co-parent with him, not just let the child meet up with him every two weeks. Do you really think that would work out long term ? How would you handle it if the child tells you they want more time with their dad, overnights or to live with their dad or anything at all ?

Then there was this – What about when dad develops a new relationship with a woman who wants him all to herself?? To be with her and their “real” kids? Followed by an example – I actually know someone who was in this exact situation. She did what you are hoping to do, with a man who she thought would be in her child’s life forever. He moved across the country, married a woman who was/is extremely uncomfortable with the situation, they had kids together, and now he hasn’t seen his oldest child in over 2 years.

The woman in the question doesn’t want a romantic relationship and so that brings up another issue – You can forgo a romantic relationship, while also not procreating with a stranger. I do not understand why anyone would have a child with a man you do not know and then give that man access to your child. It takes a level of intimacy to trust someone to father your kid, doesn’t have to be romantic.

Again, more questions – what happens if you do meet somebody and fall in love, and your partner wants to take on the role of “dad” and feels threatened by the child’s relationship with its father ? And mentioned before – What happens if the father meets somebody and falls in love and she feels threatened by it, and tells him she doesn’t want him involved with you and your child ? What happens if he gets a job opportunity that moves him across the country, or even across the world ?

A woman choosing to donor conceive really needs to seriously think through the situation and there are situations where it does make sense and can be handled well. So just some final thoughts –

Both need to be absolutely certain on how that would work. Couples that intimately know each other can struggle to communicate well enough to co-parent, even within a marriage, and even more so when they live apart. You mentioned the specific of every two weeks having visits but what do you expect the visit to entail? How will you communicate changes in schedule? Are there financial obligations? Would your expectations change if his financial situation changed? What influence would he have on life decisions such as education, religion, place of residence, activities etc. What if someone needs or wants to move? Will you be able to control who else is included in the visits? How will his family be included or excluded? How will you handle inevitable disagreements on important issues? Do you have it legally planned out if something should happen to you and you are unable to parent or pass away? Planning to have full legal custody doesn’t guarantee you will make every decision on your own for the child. Are you financially prepared to confront additional legal barriers? You also mentioned having a sibling in two years which opens a new can of worms so to speak. I have watched so many of my friends struggle to work with someone they once loved navigating these issues. Some no longer recognize the person they chose (it happened) to father their child. Parenthood fundamentally changes people and it does seem you could set you and your child up for tremendous conflict. I think I would have multiple friends and family members write down every potential question they can think of and discuss how you can legally address these questions. I would also set up a prescribed procedure that should be followed when conflict does arise. I hope that is something attorneys can legally require. I’m sure you have thought a lot about what you expect, just be certain all of the potential legal issues are addressed to the best of your ability. In my opinion it would be a mistake to cross bridges when you come to them or rely on the donor to be a benevolent actor.

And just this advice – for your own protection, talk with a lawyer first. I got a free consult with a lawyer with expertise in this area, and decided a sperm bank was a better choice. There are a lot of cases, especially in certain states, where your donor could be considered a father, and could take custody, even with a legal agreement in place. Or could prevent you from moving out of state, etc. Took me awhile to let that dream go, but it was the right choice for me.

And though there aren’t many yet (I have read an essay from one myself who recognized she would not exist otherwise, which I thought a very healthy perspective) here are some Thoughts From A IVF Donor Conceived Person (if you want to read some more from such a person’s perspective). With this one, I thought this was also a healthy perspective – “I have never doubted that I was wanted, I’ve always known I was meant to be here on this earth. My conception wasn’t down to mystical chance, I had purpose and meaning to both sets of my parents from the moment I was conceived in my little Petri dish.”

Personally, as a last word, I can relate to this as I experienced secondary infertility, I was simply too old to conceive naturally any longer, even though I did give birth to a genetically, biologically related child – “Finding that you need assistance in conceiving does not mean you have failed, and it doesn’t mean any child you conceive through assisted reproduction is in any way ‘artificial’ or different from naturally conceived children. I’m proud of both my biological mother and my mother. IVF doesn’t make them any different to other parents, and raising a child that was not her own biological material doesn’t make my mother less of a parent.”

Shame

We feel shame when we violate the social norms we believe in. At such moments we feel humiliated, exposed and small and are unable to look another person straight in the eye. We want to sink into the ground and disappear. Shame makes us direct our focus inward and view our entire self in a negative light.

I came upon the powerful graphic above yesterday and felt there was more that I could personally say about it. On my Facebook profile page yesterday, I shared – I have owned up to this before. I had an abortion at the age of 23 or so – mid 1970s. I am glad it was safe and legal. I was not being reckless. I was driving an 18-wheeler with a partner. Our dispatcher didn’t get us home to where my pharmacy was in time and I ended up pregnant. Neither he nor his family were the kind of people I would be glad to have been tied to through a child today. At the time, I had breakthrough bleeding. My ex-SIL and ex-BIL had a child with serious birth defects. I just felt the pregnancy was not progressing normally. Also, to be honest – I didn’t want to commit my life to 7 more months of going it alone with no financial support. I’ve never regretted it but pro-Life propaganda has definitely haunted me. In writing this, I searched my memory for all of the reasons why I chose that course of action.

The mothers and women in my family, and to whom I am genetically related, chose other courses of action. Back in the 1930s, the mothers of both of my own parents, chose to carry their pregnancies, spent the first few precious months with their babies, and one way or another lost that first child to adoption. I wrote, and it was true, “I didn’t want to commit my life to 7 more months of going it alone with no financial support.” In some people’s minds I was simply being selfish and I will accept that judgment, though in truth I have no regrets about doing what I did and for the reasons I did it at the time.

Yet, I felt enough shame for having chosen a different path (both of my sisters carried unplanned pregnancies to term but also gave their babies up for adoption) that it was a long time before I admitted to anyone what I did earlier in life. It was my private decision which no one but the circumstances influenced. Maybe influenced in no small measure by the legality and safety of the choice at the time. Only as Roe v Wade has come under increasing opposition have I started sharing my own story of what it was like to have made that choice and my gratitude that I had it available to my own self when I felt I needed that.

The father of my own conception made it clear he would not stand by me if I chose otherwise but I don’t think that was my major motivation. In reflecting on my statement that I would have had to “go it alone” above, I also know my parents supported one of my sisters throughout the pregnancy and then, remarkable to me now that I know more about adoption in general, my own adoptee mom coerced my sister into giving up the baby she wanted to keep and then, encouraged a lie to me that the baby had died. Intuitively, I knew it had not and concocted fantastical stories about what had actually happened to the baby believing it had been stolen and taken into Mexico (my sister had delivered at a hospital in El Paso TX very near the national border). Because of this, my mom finally admitted her truth regarding the whole situation to me.

Many women bear a cross – maybe they suffer their whole lives knowing their child is out there somewhere out of their own reach. Many of these original mothers suffer a secondary infertility and never have another child. Many struggle as single mothers to keep and raise their child. Our society does nothing to help them. My sister actually sought financial support during her pregnancy but was denied it based upon our parents financial condition. It was not my parents seeking financial support but my sister and not in increase my parents financial condition either.

After I divorced the father of my first child, I had to go to work and that meant child care. When one “family style” child care that she loved at first became a tearful battle, I left work to check on her and discovered through the window of a half door, an older child bullying her and no adults in sight. I pulled her out that day. I often had to go to my mother to beg $20 to make it through to payday. She never denied me but financially it was always difficult. At the time I divorced her father, he told me he would never pay me one cent of child support because I would just party with the money. Such a horrible perception he had of my own integrity and ethics. I didn’t want to spend my life in court fighting him for it even though the judge insisted in awarding me $25/mo “in case” I changed my mind and wanted to seek an increase. I never did. Instead, I left my daughter with her paternal grandmother while I tried to build a financial nest egg for the two of us by seeing if I was capable of driving an 18 wheel truck cross-country.

I always intended to return for her and would have never given her to her father to raise but his mother did that. He remarried a woman with a child and then they had a child together. Unintended consequences of financial desperation. And now, in a sense my story has come full circle, my shame – not even listed above – is that I gave up raising my child for financial reasons. Back when she was in day care, I couldn’t hardly answer the pediatrician’s questions, because she was away from me all day. After her father and step-mother raised her, I struggled to find birthday cards for her that reflected the lack of a daily, physical relationship I had with her. There were no role models for an absentee mother back in the mid-1970s, even though the absentee father was a standard reality.

Shame. Oh yes, I am well acquainted with it. As my daughter knows, I have struggled to find peace with not having “stuck it out,” as my own mother said to me that she would have done, to do the right thing by my daughter. It is a work in process. Recently, I reflected on all the things I did right by her in the brief early years she was physically under my care. I told her, I realize that when I was mother to you, I was a good one. And the abortion ? I atoned for it, by giving up my own genetic connection to have two egg donor conceived sons (same donor both times), that my husband might be able to have the children he desired, even as we both realized I had gotten too old to conceive naturally. Even so, they are now almost 18 and 21 years old. They have proven to me that I can “mother” children 24/7 throughout their own childhoods. At least I have no shame in that. I even breastfed both until they were just over 1 year old. I also have the knowledge that I didn’t put adoption trauma onto the fetus I aborted early in that pregnancy.

Uprooted

This kind of discovery is happening more and more often with the advent of inexpensive DNA testing. I belong to a circle of mom’s who all gave birth in a 4 month period of time in 2004. We have pretty much stayed in contact – at least a majority of us. At one point, way back when, our group ended up divided on the common question for those who conceived via Assisted Reproductive Technology over whether we would tell our children the truth or hide it. Some definitely chose that second path, my husband and I did not. I am grateful for that choice.

It’s not as though we’ve ever made this a big issue in our household and I’ve not made it a public issue locally as well (in the early days I received some hints of questions seeking to know). One of the strategies early on was to let our children tell if that was their choice and not make that choice for them. Only recently, have I become more outspoken about our family’s origins because – gee, I will be 68 this coming May and I have two sons, one that is almost 18 and one who will be 21 this February.

There is another strategy that we owe it to other woman who could be deceived by our having given birth at advanced ages that they have all the time in the world – as I believed in my 40s when my husband decided he wanted to be a father after all after 10 years of marriage. He was always glad I had “been there and done that” so no pressure on him to parent, as I do have one daughter who is now soon to be in her 50s and she has gifted me with two grandchildren. Then we learned how low the odds of that actually happening were due to my own advanced age. A nurse practitioner recommended her own fertility doctor saying “you don’t have time to waste.” He is the first one who told us that there was “a way” and that way for us was via egg donation.

We have stayed in contact with our donor since day one. Facebook makes that easier today. The boys have met her in person more than once but distance limits that contact. I do show them pictures from her FB page from time to time. When she tested with 23 and Me, I gifted my husband with a kit, and then when my oldest son turned 18, I gave him one, and rather than wait for the youngest one to turn 18, went ahead and gave him a kit.

Doing this also allowed us to tell our boys, now that they are older, all of the reasons that we chose to do what we did. Also to emphasize that they simply would not exist or be who they are any other way. There is no “if only” things had been different. And that no one could be more of a mother to them than I am and it is clear by their behavior towards me that I am precisely that to them even with this complete knowledge.

While it is decidedly strange to see another woman listed as their mother at 23 and Me after having carried their pregnancies in my womb and breastfeeding each of them for a year, as well as being in their lives 24/7, I do not regret making private message access to her available to them if they so choose.

I understand the yearning for truth about our genetics. Both of my parents were adoptees who died 4 months apart, still basically ignorant of their origins. My mom did try to get her adoption file (a file I now have complete possession of) in the early 1990s. Within a year of my dad’s death, I had identified all 4 of my original grandparents and have contact with some cousins and a couple of surviving aunts.

There are very real and serious issues with donor sperm. It has produced a lot of children with the same genetic paternity and has existed under a protection of privacy. Unlike egg donation which we are aware that our donor went through a painful process as well as a fraught experience with powerful drugs, it is relatively easy and painless to donate sperm, as my own husband did in order to give birth to genetically, biologically related sons (our sons do have the same maternity and paternity and so are 100% siblings). Some egg donors were also promised privacy in the early days of assisted reproduction.

Here is some information about the book, Uprooted, that I have featured today (but which I have not read) –

By his forties, Peter J. Boni was an accomplished CEO, with a specialty in navigating high-tech companies out of hot water. Just before his fiftieth birthday, Peter’s seventy-five-year-old mother unveiled a bombshell: His deceased father was not his biological, genetic father. Peter was conceived in 1945 via an anonymous sperm donor. The emotional upheaval upon learning that he was “misattributed” rekindled traumas long past and fueled his relentless research to find his genealogy. Over two decades, he gained an encyclopedic knowledge of the scientific, legal, and sociological history of reproductive technology as well as its practices, advances, and consequences. Through twenty-first century DNA analysis, Peter finally quenched his thirst for his origin.

In Uprooted, Peter J. Boni intimately shares his personal odyssey and acquired expertise to spotlight the free market methods of gamete distribution that conceives dozens, sometimes hundreds, of unknowing half-siblings from a single donor. This thought-provoking book reveals the inner workings—and secrets—of the multibillion-dollar fertility industry, resulting in a richly detailed account of an ethical aspect of reproductive science that, until now, has not been so thoroughly explored.

The Audiobook and ebook have been available since January 4 2022. The print book is to be released tomorrow on January 25 2022.