A Life in the Shadow

Actors – Rose Byrne as Rebecca Skloot and Oprah Winfrey as Deborah Lacks

On Friday night, my husband and I watched The Immortal Life of Henrietta Lacks on dvd. It is one of those occasional unexpected finds that impacts me deeply. Oprah Winfrey plays Deborah Lacks in the movie based upon the book. Since my name is Deborah, I connected with this powerful, at times tragic, portrayal of Henrietta’s daughter. Since the title of my blog is Missing Mom and that is what drove Deborah, who lost her mom at such a young age and who she was always missing, needing the truth about her, felt somewhat like I how felt about my missing grandparents (both of my parents were adopted). So, I am happy to share Deborah’s story here. I highly recommend either the book or the movie.

The only surviving daughter and fourth child of David Day Lacks and Henrietta Lacks, Deborah “Dale” Lacks Pullum spent most of her early life wondering what happened to her beautiful mother and worrying about what it could mean for her own life and identity. Day was Henrietta’s first cousin, neither had living mothers and were being raised by grandparents who had them sleeping in the same bedroom. No wonder by the age of 14, Henrietta was pregnant. Day married her 6 years later when she was 20.

It is hard for Rebecca Skloot, an independent science writer, to gain Deborah’s trust given her early life of familial abuse, followed by the general disregard of the scientific community for Henrietta’s family. Deborah’s need to connect with her mother’s story is intensified by her difficult childhood and a non-existent relationship with her father, whose lack of attention has disastrous effects on her emotional life:

After Henrietta’s death, Ethel and Galen move in with Day to “help take care of the children.” But Ethel always had a hatred for Henrietta because Galen was attracted to her, and she transferred that with gusto to the children. She forces them to work the farm all day without food or drink and beats them if they disobey. In spite of Deborah’s protests, Galen sexually molests her as often as he can.

Despite the beatings by both of these guardians and the molesting by Galen, Deborah felt closer to Galen than she ever had felt with her father. When he wasn’t hitting or molesting her, Galen showered her with attention and gifts. He bought her pretty clothes, and took her for ice cream. In those moments, Deborah pretended he was her father, and she felt like a regular little girl.

Enter Lawrence’s (who was Henrietta’s oldest son) wife, Bobbette. She insists that they take in and raise the younger Lacks siblings to get them out of the clutches of the abusive Ethel and Galen. Bobbette makes it pretty darn clear that if that couple ever touches Henrietta’s kids again, she’s going to open up a can of ??? on them.

In Henrietta’s absence, Bobbette also acts as a mentor and inspiration to young Deborah. She tells her to stay in school because that’s what will get her success in life. She also encourages her to fight off the advances of her boy cousins because, she said, “That’s uncalled for.” She warns Deborah about the dangers of first cousins having children together.

Deborah reads articles about HeLa cells (named after an abbreviation of Henrietta Lacks name) with a dictionary in hand and learns to use the Internet to make sense of her mother’s immortal life. Her brothers don’t understand her need to pursue something that has been so hurtful to them. Deborah is quite clear in her mission: “All this stuff I’m learning,’ she said, ‘it make me realize that I did have a mother, and all the tragedy she went through. It hurts but I wanna know more, just like I wanna know about my sister (her sister Elsie had defects that eventually institutionalized her, where she later died young). It make me feel closer to them, but I do miss them. I wish they were here.”

The need to know and to be in control of her past is always stronger for Deborah than the need to forget her past and protect herself from future harm.

Her older brother, Lawrence, never stopped taking care of Deborah. He put $6,000 on his credit card to pay for her funeral. She died less than a year before the book, written by author Rebecca Skloot, about her mother was published.

“Henrietta had been chosen by the Lord to become an immortal being. The immortality of Henrietta’s cells had something to do with her telomeres and how HPV interacted with her DNA.”

Slightly Off Topic

This may seem off topic but please bear with me.  This morning I realized that my tolerance for injustice has diminished.  I believe that learning about how my maternal grandmother was trapped and exploited has done that to me.

My grandmother’s only deficiency was poverty.  She went to Porter-Leath orphanage for temporary care of my mother while she attempted to get on her feet financially and they accepted my mom under a temporary condition.  My grandmother tried to reach her husband, my grandfather, who didn’t respond to the Juvenile Court’s notification – I believe – because he was out with the WPA trying to help Arkansas deal with a Super Flood of the Mississippi River that began the month my mom was born.

Georgia Tann had a repeat, paying customer in my adoptive grandmother.  She had previously adopted a son from the Tennessee Children’s Home and returned to them seeking a little sister for the family before my mom had even been born.  Miss Tann had a network of enablers, movers and shakers in the Memphis elite that helped her acquire product to sell.  Forgive my harsh judgment.

So my poor grandmother was pressured with a surrender or I’ll have you declared unfit by my good friend, the Juvenile Court Judge Camille Kelley.  Even so, 4 days later my grandmother tried but failed to recover my mom.  She never had any other children.

I have always paid my medical bills – even those I thought unfair – even if I made the creditor wait and sent them only the smallest amounts for the longest time.  Having been uninsured for 30 years, I was grateful to finally qualify for Medicare.  I thought might as well catch up the basics and so went to my local nurse practitioner for a pap smear.

Unknown to me, the coding recommended by the laboratory to the doctor’s office for women between the ages of 30 and 65 was to also do a hpv test on the same specimen.  This was never discussed with me.  Medicare paid $29.44 against a bill of $128.20 for the pap smear but refused to pay the $169.80 for the hpv test.

I have been fighting this bill for 8 months and find myself trapped and exploited by a greedy laboratory.  I offered them $60 for the hpv test if they would write off the rest as they did for Medicare.  I thought I was being more than reasonable.

They have refused my offer and so I will now refuse to give them even a penny.  I no longer tolerate such exploitation.  The doctor’s office should have advised me to wait a year for the pap smear and this would not have even occurred.  I refuse to be a victim.  I never gave my permission and I won’t give in now.

Thank you for reading if you made it this far.  Do NOT allow LabCorp to do any tests for you.  I won’t ever again allow them to do any tests for me and I will not use my local doctor’s office for my next Medicare approved pap smear in 3 years.  They both lose.  I am not worried about a small black mark on an otherwise excellent credit rating.  I don’t intend to use credit anyway but I do have an Amazon Visa as long as I can pay in full with the first bill if I need that or just want to burnish my credit rating.